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Links & Community Resources

The information about hospice, terminal illnesses and related health and medical topics available through the Internet is overwhelming. We have selected a few sites that we hope your will find useful in answering your questions. A leading source of online information on palliative and end-of-life care. Here nurses may share information with other professionals about initiatives and projects related to improving patient care at the end-of-life.

National Hospice and Palliative Care Organization
http://www.nhpco.org/templates/1/homepage.cfm
One of many local hospice sites with many, many links to a variety of hospice information.

Healthfinder
http://www.healthfinder.gov/
Access to journals, news and other links relating to medical specialties and drugs. It also provides access to a medical dictionary.

Medscape
http://www.medscape.com/px/urlinfo
Links to consumer health information, AIDS information center, and searchable database of physicians.

American Medical Association
http://www.ama-assn.org/ama/pub/category/3943.html
Large collection of cancer information and links based at the University of Pennsylvania.

Medical/Health Sciences Libraries
http://www.lib.uiowa.edu/
A national coalition to improve care and caring at the end of life

Empowering Caregivers
http://www.care-givers.com/
A community based program to help people learn about charitable giving through a will or from an estate.

Sacramento Healthcare Decisions
http://www.sachealthdecisions.org/
The Coalition is a statewide partnership of over 35 regional and statewide organizations dedicated to the advancement of palliative medicine and end-of-life care in California.

The Coalition
http://www.finalchoices.calhealth.org/
A national nonprofit organization that partners individuals and organizations in a powerful collaboration to improve how people die in our society.

Education for Physicians on End–of–Life Care (EPEC)
www.epec.net

End–of–Life Nursing Care Consortium (ELNEC)
www.aacn.nche.edu/elnec

End–of–Life Physicians Education Resource Center (EPERC)
www.eperc.mcw.edu

 

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Quotes

Judy Norton
"Coping with terminal illness is all consuming for patient and family. As a hospice nurse, I feel it is most important to advocate, respect and use the knowledge we have to make the end of life the most comfortable it can be while always keeping in mind the unique needs of each patient."
~Jody Norton, RN